Patient and Public Involvement

This module involves the establishment of Responsible Research and Innovation (RRI) activities to better reflect the perspectives of patients and members of the public. Awareness of the need for this form of dialog has been increasing in recent years. JSRM is advancing plans to promote interactive communication with patients and members of the public, with a view to utilizing their perspectives in clinical research protocols and other areas.

In the initial stages of research, JSRM will carry out hearings to better understand the views of patients and family members affected by diseases that are expected to be positively impacted by the practical implementation of regenerative medicine. The following methods will be used:

• Focus group interviews
• Questionnaire-based surveys

Based on the results of these efforts, JSRM will explore possibilities to ensure that regenerative medicine develops as an advanced medical science in keeping with the needs of society.

Not all treatments classified as regenerative medicine have been proven to be effective. JSRM plans to post patient education videos on the internet about aspects of the field that require further detailed explanation.

“Rethinking Regenerative Medicine with Patients and Society (Kidney and Liver Disorders)”

Bringing people together to discuss “Recent Information about Regenerative Medicine Research”

This event was cancelled due to bad weather caused by Typhoon No. 12. We apologize for any inconvenience and appreciate your understanding.

Event Details

The Japanese Society for Regenerative Medicine (President: Yoshiki Sawa, MD, PhD) will hold a Patient and Public Involvement event as part of the Project to Build Foundation for Promoting Clinical Research of Regenerative Medicine run by the Japan Agency for Medical Research and Development (AMED). Many believe that the involvement of patients and members of the public in clinical research in the field of regenerative medicine will become even more important in the future. Through these efforts, JSRM aims to create more effective knowledge-sharing to better reflect patients’ expectations and needs through dialog and consultations between patients and researchers. Part 1 of this event features speeches explaining the fundamentals of regenerative medicine and presentations from researchers studying specific diseases. In Part 2, researchers, patients, family members, and medical professionals will participate in group discussions for “Recent Information about Regenerative Medicine Research.”

Details of the event are outlined below. We look forward to your participation.

Date/Venue

Date/Time: 10:00 am–3:45 pm, Sunday, July 29, 2018

Venue: A/B Conference Rooms, 3^rd floor, Shin-Osaka Brick Building (3 minutes’ walk from Shin-Osaka Station)

Venue map: http://lasante-brick.jp/business/meeting-access.html

Program

Part 1: 10:00–11:40 am

Presentations about regenerative medicine – “Latest Information About Regenerative Medicine”

Speech:    Regenerative Medicine and Research – From Cutting-Edge Research to Treatment

Yoshimi Yashiro (Chair of the Japanese Society for Regenerative Medicine)

Speech:    Treating Liver Cirrhosis with Regenerative Medicine

Shuji Terai (Professor, Niigata University)

Speech:    Utilizing iPS Cells to Develop Regenerative Medicine for Kidney Disease

Kenji Osafune (Professor, Center for iPS Cell Research and Application, Kyoto University)

Chairperson: Jin Higashijima (Lecturer, Yamaguchi University)

Part 2: 1:00 pm–3:45 pm

Group Discussions – “Recent Information about Regenerative Medicine Research”

Event Registration

Participants must register in advance. If you wish to attend, please fill out and submit the registration form.

Fees: Entry is free of charge

Registration Form *Click on the red text to link to the Registration Form (hosted on an external website.)

All personal information provided by participants will be handled securely and used as outlined below. Personal information will not be used for any other purpose.

• Determining participant details
• Registration on the day of the event
• Emergency contact details in case the event is cancelled
• Statistics and analysis

Registration Deadline

July 22, 2018

*Registration has now closed.

Other Important Information

Photographs and videos will be taken during the event to record proceedings and acquire materials for PR purposes. Photographs and video taken during the event may be posted on the JSRM website and/or related websites. Efforts will be made to protect the privacy of participants wherever possible, however, attendees should be aware that these images may be posted online before submitting the registration form.

Presentation Materials

A report from the event will be posted on this website, Facebook, and other media approximately three months after the event. The posting of the report may be delayed due to unforeseen circumstances. In the event of a delay, the scheduled release date will be posted on this page.

Inquiries

Japanese Society for Regenerative Medicine

Nihonbashi Life Science Building, 2-3-11 Nihonbashi-honcho, Chuo-ku, Tokyo 103-0023

E-mail: ppi@jsrm.jp

Tel: 03-6262-3028